Thursday, November 16 | |
7:30 pm CST | Welcome to the 2023 FOP Family Gathering |
Friday, November 17 | |
9:00 to 9:05 CST | Welcome and Opening Remarks |
9:05 to 9:45 CST | Progress in FOP: From the Bench to the Bedside |
9:45 to 11:00 am CST | Insights from FOP Medical Experts and Questions from the Community |
11:30 am to 12:45 pm CST | Clinical Trials for the FOP Community |
2:00 to 3:30 CST |
Meet the Researchers: An interactive lab tour with Q&A from researchers at UT Southwestern Creative Expression Project: Add your message to the "Tree of Strength" which will be displayed in the lobby of the conference hotel in Dallas. Help us all remember how powerful we are when we come together! |
4:00 pm to 5:30 pm CST | Small-group discussions by persona and language |
6:30 pm CST | Team Trivia |
Saturday, November 18 | |
9:00 to 9:10 am CST | Welcome Back and Recap of Day 1 |
9:10 to 10:25 am CST | Safety and FOP |
10:55 am to 12:10 pm CST | Symptom Management Strategies for FOP |
1:00 to 3:00 pm CST |
Nutrition and FOP: FOP mom, Marie H. Fahlberg be sharing her professional expertise in the field of nutrition and lifestyle-related health combined with her 25 years of experience as a mother of a son with FOP Laughing Lovebugs Yoga Session: Enjoy the benefits of deep-breathing and endorphins as you laugh your way through this session. |
3:00 to 4:00 pm CST | Closing Session: FOP Community Perspectives |