Agenda 2023 Virtual Family Gathering

Thursday, November 16  
7:30 pm CST Welcome to the 2023 FOP Family Gathering
Friday, November 17  
9:00 to 9:05 CST Welcome and Opening Remarks
9:05 to 9:45 CST Progress in FOP: From the Bench to the Bedside
9:45 to 11:00 am CST Insights from FOP Medical Experts and Questions from the Community
11:30 am to 12:45 pm CST Clinical Trials for the FOP Community
2:00 to 3:30 CST

Meet the Researchers: An interactive lab tour with Q&A from researchers at UT Southwestern

Creative Expression Project: Add your message to the "Tree of Strength" which will be displayed in the lobby of the conference hotel in Dallas. Help us all remember how powerful we are when we come together!

4:00 pm to 5:30 pm CST Small-group discussions by persona and language
6:30 pm CST Team Trivia
Saturday, November 18  
9:00 to 9:10 am CST Welcome Back and Recap of Day 1
9:10 to 10:25 am CST Safety and FOP
10:55 am to 12:10 pm CST Symptom Management Strategies for FOP
1:00 to 3:00 pm CST

Nutrition and FOP: FOP mom, Marie H. Fahlberg be sharing her professional expertise in the field of nutrition and lifestyle-related health combined with her 25 years of experience as a mother of a son with FOP

Laughing Lovebugs Yoga Session: Enjoy the benefits of deep-breathing and endorphins as you laugh your way through this session. 

3:00 to 4:00 pm CST Closing Session: FOP Community Perspectives

 

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