Click here for the virtual meeting agenda
Thursday, November 16 |
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10:00 am to 4:00 pm |
Pre-Conference Workshop for Adult Siblings of Individuals with FOP |
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English-speakingIn-Person Attendees |
Spanish-speaking In-Person Attendees | |
4:30 pm to 6:00 pm |
Fun Zone Meet and Greet
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Fun Zone Meet and Greet |
7:00 pm |
Welcome Dinner Welcome to the 2023 FOP Family Gathering Session begins at 7:30 pm |
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Friday, November 17 | ||
9:00 to 9:05 |
Welcome and Opening Remarks |
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9:05 to 9:45 |
Progress in FOP: From the Bench to the Bedside |
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9:45 to 11:00 am |
Insights from FOP Medical Experts and Questions from the Community |
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11:00 to 11:30 am |
Break and Time to Connect |
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11:30 am to 12:45 pm |
Clinical Trials for the FOP Community |
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12:45 to 2:00 pm |
Lunch |
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English-speakingIn-Person Attendees |
Spanish-speaking In-Person Attendees |
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2:00 to 3:30 |
Small-group discussions by personas with icebreaker activities |
Small group discussion for spanish-speaking attendees |
3:30 to 4:00 pm |
Break and Time to Connect |
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4:00-5:30 pm |
Community activity stations:
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Community activity stations:
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6:30 pm |
Evening Dinner and Music |
Evening dinner and music |
Saturday, November 18 | ||
9:00 to 9:10 am |
Welcome Back and Recap of Day 1 |
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9:10 to 10:25 am |
Safety and FOP |
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10:25 to 10:55 am |
Break and Time to Connect |
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10:55 am to 12:10 pm |
Symptom Management Strategies for FOP |
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12:10 to 1:10 pm |
Lunch |
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English-speakingIn-Person Attendees |
Spanish-speaking In-Person Attendees | |
1:10 to 2:40 pm |
Rotating stations:
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Rotating stations: Homemade Tools and Problem Solving Nutrition and FOP Home adaptions and comfort |
2:40 to 3:00 pm |
Break and Time to Connect |
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3:00 to 4:00 pm |
Closing Session: FOP Community Perspectives |
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4:00 to 5:00 pm |
Laughing Lovebugs Yoga Session:Enjoy the benefits of deep breathing and endorphins as you laugh your way through this session. |
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6:30 pm |
Movie and Dinner (optional for those who remain on-site) |
Ancillary Activities
In addition to the general session, workshop and social event schedule included below the following activities will be taking place throughout the weekend:
- Fun Zone and Teen Zone
- Ask a Doctor and Ask a Dentist Meetings
- FOP Biobank Donation Opportunity
- Ability Toolbox Tool Display