The input of advisors is critically important to the development of the patient and medical portals and their ongoing user adoption and enhancements. Thank you to our advisors for your contributions to the advancement of FOP research as we work towards a cure.
Medical Advisory Board
|
Chair
Carmen de Cunto, MD Hospital Italiano de Buenos Aires Argentina |
Vice Chair
Genevieve Baujat, MD Hôpital Necker‐Enfants Malades France |
Academic Medical Advisors
|
Mona Al Muakaddam, MD, MS
University of Pennsylvania United States |
Maja di Rocco, MD
Gaslini Institute Italy |
Patricia Delai, MD
Hospital Israelita Albert Einstein Instituto de Ensino e Pesquisa Brazil |
Marelise Eekhoff, MD, PhD
VU Medical Center, Amsterdam Netherlands |
|
Zvi Grunwald, MD
Thomas Jefferson University Hospital United States |
Nobuhiko Haga, MD
University of Tokyo Japan |
Edward Hsiao, MD, PhD
UCSF School of Medicine United States |
Frederick Kaplan, MD
University of Pennsylvania United States |
|
Richard Keen, MB, BS, BSc, PhD, MRCP
Royal National Orthopaedic Hospital United Kingdom |
Rolf Morhart, MD
Klinikum Garmisch‐Partenkirchen Germany |
Robert Pignolo, MD, PhD
Mayo Clinic United States |
Christiaan Scott, MBChB, FCPaed
Red Cross Children's Hospital South Africa |
|
Keqin Zhang, MD, PhD
Shanghai Tongji University China |
Patient Advisory Board
|
Helen Bedford-Gay, United Kingdom
|
Brooke Connell, Canada
|
Ciske Faber, South Africa
|
|
Jelena Milosevic, Serbia
|
Manuel Robert, Argentina
|
Kim Shields, United States
|
IFOPA Staff
|
Sammi Kile, FOP Registry Project Manager
|
Danielle Kerkovich, PhD, Research Development & Partnerships Director
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