Advisory Boards

The input of advisors is critically important to development of the patient and medical portals and their ongoing user adoption and enhancements. Thank you to our advisors for your contributions to the advancement of FOP research as we work towards a cure. 

Medical Advisory Board

Academic Medical Advisors

Genevieve Baujat, MD
Hôpital Necker‐Enfants Malades

Matt Brown
University of Queensland

Carmen de Cunto, MD
Hospital Italiano de Buenos Aires

Maja di Rocco, MD
Gaslini Institute

Patricia Delai, MD
Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa

Marelise Eekhoff, MD, PhD
VU Medical Center, Amsterdam

Zvi Grunwald, MD
Thomas Jefferson University Hospital
United States

Nobuhiko Haga, MD
University of Tokyo

Edward Hsiao, MD, PhD
UCSF School of Medicine
United States

Frederick Kaplan, MD
University of Pennsylvania
United States

Richard Keen, MB, BS, BSc, PhD, MRCP
Royal National Orthopaedic Hospital
United Kingdom

Rolf Morhart, MD
Klinikum Garmisch‐Partenkirchen

Robert Pignolo, MD, PhD
University of Pennsylvania
United States

Christiaan Scott, MBChB, FCPaed
Red Cross Children's Hospital
South Africa

Keqin Zhang, MD, PhD
Shanghai Tongji University

Pharmaceutical Industry Advisors

Anthony Boral, MD, PhD, Blueprint Medicines

Donna Grogan, MD, Clementia Pharmaceuticals, Inc.

Eduardo Forleo Neto, MD, MSc, Regeneron Pharmaceuticals, Inc.

Patient Advisory Board

Oliver Collins, Australia

Sharon Kantanie, United States

Jelena Milosevic, Serbia

Marin Wallace, Canada

Nicky Williams, United Kingdom

Staff and consultant support for both boards includes:

Adam Sherman, Research Development & Partnerships Director

Mary Anne Fitzpatrick, FOP Registry Project Director


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