Advisory Boards

The input of advisors is critically important to the development of the patient and medical portals and their ongoing user adoption and enhancements. Thank you to our advisors for your contributions to the advancement of FOP research as we work towards a cure. 

Medical Advisory Board

Carmen de Cunto, MD
Hospital Italiano de Buenos Aires

Vice Chair
Genevieve Baujat, MD
Hôpital Necker‐Enfants Malades

Academic Medical Advisors

Mona Al Muakaddam, MD, MS
University of Pennsylvania
United States

Maja di Rocco, MD
Gaslini Institute

Patricia Delai, MD
Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa

Marelise Eekhoff, MD, PhD
VU Medical Center, Amsterdam

Zvi Grunwald, MD
Thomas Jefferson University Hospital
United States

Nobuhiko Haga, MD
University of Tokyo

Edward Hsiao, MD, PhD
UCSF School of Medicine
United States

Frederick Kaplan, MD
University of Pennsylvania
United States

Richard Keen, MB, BS, BSc, Ph.D., MRCP
Royal National Orthopaedic Hospital
United Kingdom

Rolf Morhart, MD
Klinikum Garmisch‐Partenkirchen

Robert Pignolo, MD, PhD
Mayo Clinic
United States

Christiaan Scott, MBChB, FCPaed
Red Cross Children's Hospital
South Africa

Keqin Zhang, MD, PhD
Shanghai Tongji University

Pharmaceutical Industry Advisors

Anthony Boral, MD, PhD, Blueprint Medicines

Scott Mellis, MD, PhD, Regeneron Pharmaceuticals, Inc.

Jim Roach, MD, Clementia, an Ipsen Company

Patient Advisory Board

Helen Bedford-Gay, United Kingdom

Oliver Collins, Australia

Brooke Connell, Canada

Ciske Faber, South Africa

Jelena Milosevic, Serbia

Manuel Robert, Argentina

Kim Shields, United States


Sammi KileFOP Registry Project Manager

Adam Sherman, Research Development & Partnerships Director


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