Advisory Boards

The input of advisors is critically important to the development of the patient and medical portals and their ongoing user adoption and enhancements. Thank you to our advisors for your contributions to the advancement of FOP research as we work towards a cure. 

Medical Advisory Board
Chair
Carmen de Cunto, MD
Hospital Italiano de Buenos Aires
Argentina
Vice Chair
Genevieve Baujat, MD
Hôpital Necker‐Enfants Malades
France
Academic Medical Advisors
Mona Al Muakaddam, MD, MS
University of Pennsylvania
United States
Maja di Rocco, MD
Gaslini Institute
Italy
Patricia Delai, MD
Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa
Brazil
Marelise Eekhoff, MD, PhD
VU Medical Center, Amsterdam
Netherlands
Zvi Grunwald, MD
Thomas Jefferson University Hospital
United States
Nobuhiko Haga, MD
University of Tokyo
Japan
Edward Hsiao, MD, PhD
UCSF School of Medicine
United States
Frederick Kaplan, MD
University of Pennsylvania
United States
Richard Keen, MB, BS, BSc, PhD, MRCP
Royal National Orthopaedic Hospital
United Kingdom
Rolf Morhart, MD
Klinikum Garmisch‐Partenkirchen
Germany
Robert Pignolo, MD, PhD
Mayo Clinic
United States
Christiaan Scott, MBChB, FCPaed
Red Cross Children's Hospital
South Africa
Keqin Zhang, MD, PhD
Shanghai Tongji University
China
Pharmaceutical Industry Advisors
Anthony Boral, MD, PhD
Blueprint Medicines
Abdelali MAJDI, MD
Ipsen
Scott Mellis, MD, PhD
Regeneron Pharmaceuticals, Inc.
Patient Advisory Board
Helen Bedford-Gay, United Kingdom
Oliver Collins, Australia
Brooke Connell, Canada
Ciske Faber, South Africa
Jelena Milosevic, Serbia
Manuel Robert, Argentina
Kim Shields, United States
IFOPA Staff
Sammi Kile, FOP Registry Project Manager
Adam Sherman, Research Development & Partnerships Director

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