Advisory Boards

The input of advisors is critically important to the development of the patient and medical portals and their ongoing user adoption and enhancements. Thank you to our advisors for your contributions to the advancement of FOP research as we work towards a cure. 

Medical Advisory Board
Carmen de Cunto, MD
Hospital Italiano de Buenos Aires
Vice Chair
Genevieve Baujat, MD
Hôpital Necker‐Enfants Malades
Academic Medical Advisors
Mona Al Muakaddam, MD, MS
University of Pennsylvania
United States
Maja di Rocco, MD
Gaslini Institute
Patricia Delai, MD
Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa
Marelise Eekhoff, MD, PhD
VU Medical Center, Amsterdam
Zvi Grunwald, MD
Thomas Jefferson University Hospital
United States
Nobuhiko Haga, MD
University of Tokyo
Edward Hsiao, MD, PhD
UCSF School of Medicine
United States
Frederick Kaplan, MD
University of Pennsylvania
United States
Richard Keen, MB, BS, BSc, PhD, MRCP
Royal National Orthopaedic Hospital
United Kingdom
Rolf Morhart, MD
Klinikum Garmisch‐Partenkirchen
Robert Pignolo, MD, PhD
Mayo Clinic
United States
Christiaan Scott, MBChB, FCPaed
Red Cross Children's Hospital
South Africa
Keqin Zhang, MD, PhD
Shanghai Tongji University
Patient Advisory Board
Helen Bedford-Gay, United Kingdom
Brooke Connell, Canada
Ciske Faber, South Africa
Jelena Milosevic, Serbia
Manuel Robert, Argentina
Kim Shields, United States
Sammi Kile, FOP Registry Project Manager
Danielle Kerkovich, PhD, Research Development & Partnerships Director

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