Virtual Rare Disease Week on Capitol Hill

WHEN
February 22, 2022 at 1:00pm - 2pm Eastern Time (US & Canada)

The EveryLife Foundation is hosting Virtual Rare Disease Week on Capitol Hill February 22 — March 3, 2022 bringing together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. There will be lots of activities including a Rare Disease Congressional Caucus Virtual Briefing.

This virtual event is for the US only. More information and registration.

Make a Difference

Donate Connect Fundraise
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter