We understand that the news of a FOP diagnosis can be an emotional experience and that the amount of information you find online may feel overwhelming. Our hope is that this packet will help alleviate that feeling by providing you with a toolkit of essential resources for navigating life with FOP and connecting you to a life-long relationship with the IFOPA and the FOP community.
If you're a family adjusting to a new FOP diagnosis or that has just connected to the IFOPA for the first time we would love to send you a folder to help ensure that when you're ready to reach out you have all the information you need to get the support you deserve.
Request a welcome packet in one of the following languages by clicking here to complete a brief form:
- Dutch
- English
- French
- German
- Italian
- Portuguese
- Russian
- Spanish
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