Rare Disease Day 2018 - 4.5 Days of Research Funded!

Giving hope to the community

IFOPA_RDD_Heart.jpgIn the last 5 days of February, 171 donors and raised more than $8,200 to fund 4.5 days of research. These gifts bring hope to the entire FOP community - THANK YOU! This year's total is 80% more than what was raised on Rare Disease Day 2017.

It was exciting to see the FOP community embrace #RareDiseaseDay2018 and change profile pictures, share stories and raise funds for FOP research. The IFOPA's social media posts reached more than 11,000 people. Thank you for helping spread awareness about FOP! #ShowYourRare #cureFOP


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