You made this happen! Hear from DDF attendees about the value of this critical event
Every two years, the IFOPA hosts the FOP Drug Development Forum (DDF). It is the ONLY scientific conference in the world solely focused on fibrodysplasia ossificans progressiva (FOP).
In June, academic researchers, clinician scientists, and team members of multiple pharmaceutical companies gathered in Stockholm, Sweden (or participated virtually) in the sixth annual DDF. The academic researchers and clinician scientists represented 43 different institutions from around the world.
The DDF is unique because it features a talk from a person living with FOP and a talk from a parent of a young child. There are also several panel discussions featuring patients and parents. We want to ensure the attendees hear about the experiences of those actually living with FOP. This interaction helps inform the research and drug development activities of DDF attendees.
It’s hard to overstate the value of this conference. So, instead, we asked a few attendees to share their experience:
This is all possible thanks to committed donors like you! Because of your generosity, we can continue to host the DDF. This conference provides a crucial opportunity for researchers, clinician scientists and pharmaceutical teams to network with each other and meet FOP patients.
For many attendees, this might be one of their few chances to meet patients and parents face to face and see the daily impact this disease has on people around the world. For individuals with FOP, it’s an opportunity to share their story and see firsthand how many people and companies are committed to finding treatments and a cure.
We're grateful to our donors for your continued support! We couldn’t accomplish our mission — which includes the DDF — without you.
If you have any questions or comments about this article, contact Cathryn Roys, Community Fundraising & Special Projects Manager, at [email protected] or +1 (843) 709-3244.