June 26, 2021 at 12pm - June 27, 2021 Eastern Time (US & Canada)
This is not an IFOPA-sponsored event. More information at https://rarediseases.org/living-rare-forum
Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases. We will hear from patients, caregivers, and advocates, as well as the medical community and how everyone works together for the benefit of the rare disease community.