National Organization of Rare Disorders (NORD) Patient and Family Forum Living Rare, Living Stronger Interactive Virtual Forum

June 26, 2021 at 12:00pm - June 27, 2021 Eastern Time (US & Canada)

This is not an IFOPA-sponsored event. More information at

Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases. We will hear from patients, caregivers, and advocates, as well as the medical community and how everyone works together for the benefit of the rare disease community.  

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