Meet Other Patients

Read stories of living with FOP

Meet other people living with FOP and get inspired by their stories of strength and courage. Check out Family Blogs and Websites and read their inspiring stories to learn more. 

Sign up for our monthly e-newsletter to stay in the loop about the latest FOP research and stories of families living with FOP.

Want to Connect Directly with Other Patients? 
Check out our support group offerings, contact IFOPA or call (816) 809-2772.

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