Share Your Vision: Survey open through Monday, November 4
As you know, the FOP landscape is shifting faster than ever before. With the first approved drug and four (soon to be five) ongoing clinical trials, this is a critical moment for the IFOPA. It is an opportunity to take stock of our community's needs, for today and the future, so that we can continue to do our best to meet them.
The IFOPA's Board of Directors launched the process to define our 2025-2028 strategic plan earlier this fall, with the support of a strategic planning partner. For this effort to be most successful, we are counting on the participation of the FOP community to ensure that your needs, hopes, and aspirations are reflected in the work we prioritize over the next three years.
We are eager to hear from as many of our community members as possible — including the individuals and families we serve; those who help fund our work; and the researchers, doctors, and pharmaceutical companies we partner with.
With hopes for high engagement, we encourage you to share your thoughts in our strategic planning survey. Completing this survey will take between 15 and 25 minutes, and the Google Translate button allows you to complete the survey in any language.
Your participation will help ensure that the decisions we make about the future of the IFOPA reflect your vision of our most impactful and valuable work.
Between now and February, when the plan will be finalized, you will continue to hear from us with opportunities to share your feedback and updates on how this work is going. We commit to being as transparent with you as possible so that by the time the plan is finalized, the priorities we've set make sense to us all.
A note on confidentiality: This survey is being administered by our strategic planning partner, People Centered Change. The survey does not collect any identifying information, and only our partner will see the raw data. If you have any questions about survey confidentiality, or any other aspect of the survey, you can reach out to Julia Monaghan.
Thank you so much for sharing your time and valuable feedback as we look to create the IFOPA’s brightest future!