Join Us — In Pursuit of a Cure 2021
The support of the FOP community — YOU — made the inaugural In Pursuit of a Cure Campaign a success. THANK YOU! Together, we funded ACT for FOP grants for drug development research — including a new pilot study in Israel — and the IFOPA’s first gene therapy grant with the University of Massachusetts.
We’re very excited by the encouraging progress already being made through expanded research efforts. Drug development research continues to grow globally and the first year of gene therapy research had very positive results. But we’re in a pivotal moment and need to keep the momentum going.
Please join the IFOPA for In Pursuit of a Cure 2021 — Investing in Progress. Believing in Hope. to raise $300,000 and continue the search for treatments and a cure. It will take all of us to build on the success and accelerate promising research.
You can help — Get the Facts. Spread the Word. Take Action.
- Register for the August 12 webinar to learn about gene therapy, how it’s being applied to FOP and hear from the new IFOPA Research Director Danielle Kerkovich, PhD.
- Register for the special live video event on August 25 or 26 where you’ll hear directly from researchers receiving grants from the IFOPA. We’ll share updates on current research funded by ACT for FOP grants, advancements being made in gene therapy for FOP in just one year and stories of resilience, courage and hope from families living with FOP.
- Invite family and friends to join you for the live event and inspire them to take part in this important campaign. We have postcards and an electronic flyer we can send you. Email us.
- Make your donation to support research and create a personal fundraising page that you send to others so they can contribute too.
Now is the time to give! To kick off In Pursuit of a Cure 2021, generous friends of the IFOPA are providing a matching gift of $50,000! This means you can make a gift today that will be DOUBLED to have twice the impact.
“The amazing progress we’ve made in FOP research — from the FOP gene discovery to development of potential treatments — is only possible because of the dedication of our community,” said IFOPA Executive Director Michelle Davis.
“By everyone getting involved, we’ll fund this year’s ACT for FOP drug development grants and start phase 2 of the gene therapy research. And we’ll get closer to a world without FOP.”
Candace and Jason Hixson are serving as event chairs for In Pursuit of a Cure 2021. They’re committed to supporting research to make life better for their son, Samson, who has FOP, and everyone in the FOP community. Please join them in pursuing every road that could lead us to treatments and a cure for FOP.