Spread the word.
None of the incredible progress we’ve made in FOP research — identification of the FOP gene and the development of potential treatments — would be possible without the dedication of our community. And while we’ve come so far, we still have far to go.
We can search for treatments and a cure together. The IFOPA invites you to join the In Pursuit of a Cure Campaign to expand FOP research — and we hope you will invite your friends and family to join as well!
Our FOP families and communities are the best fundraisers! As we work toward our $250,000 goal, please help kick off the In Pursuit of a Cure Campaign.
Set Up a Personal Fundraising Page
- We’ll provide you a page where you can share your FOP story, photos and why you want to see FOP research grow.
- Or we can provide a generic FOP community template for you.
- You’ll set a goal and have a unique URL to send out to your friends and family.
- You’ll get updates on who has donated to your campaign.
Invite Your Friends and Family to Our Virtual Event
We can provide you postcards or an electronic flyer to invite your friends and family to the August 26 / 27 event — In Pursuit of a Cure - An Evening of Inspiration and Possibility with the IFOPA. Email Cathryn Roys, Community Fundraising Manager, to get your postcards and/or electronic flyer.