Spread the Word

Advancing FOP Research Together

Our FOP families are the best fundraisers and ambassadors! This year, we hope you’ll help us get the word out about the 2022 In Pursuit of a Cure Campaign and reach our ambitious goal of raising $525,000 to support:

Gene therapy research for the treatment of FOP
Education and support for clinical trials, including STOPFOP, a clinical trial being held in The Netherlands, Germany and the United Kingdom

Lots of Ways to Get Involved

Your energy and support keep FOP research moving forward. As a member of our FOP family, you know we won’t stop until we reach our shared vision of “A cure for FOP, accessible worldwide.”

Here are a few ideas for spreading the word:

Share social posts about In Pursuit of a Cure with your network
Update your profile pic with our special In Pursuit of a Cure images
Share the new invitation flyer and invite your family and friends to join you on September 29 or 30
Set up your own fundraising page (Check out step-by-step instructions)
Contribute to the campaign and help get us off to a strong start

Make a Difference

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