Pursuit of a Cure - Spread the Word

Research is the key.
Together, let's find a cure for FOP.

Spread the word.

Picture of Doctor

It’s the dedication and generosity of our amazing FOP community — YOU — that has driven FOP research since 1990. As a member of our FOP family, you know that our shared vision is "A cure for FOP, accessible worldwide."

With the 2021 In Pursuit of a Cure Campaign, we’re excited to continue the exploration of gene therapy for the treatment of FOP and fund NEW ACT for FOP drug development grants.

Gene therapy does not replace traditional drug discovery. Gene therapy represents another weapon in our arsenal against the devastating effects of FOP. 

The In Pursuit of a Cure Campaign brings us together in the search for treatments and a cure.

Our FOP families and communities are the best fundraisers! As we work toward our $300,000 goal, please help kick off the In Pursuit of a Cure Campaign.

Want to learn more about how you can help?

Watch this recording on how to set up your personal fundraising page and find out about resources available to help you invite your friends and family to the live event on August 25 or 26.

Set Up a Personal Fundraising Page

We have everything you need to start your own In Pursuit of a Cure fundraiser.
  • We’ll provide you a page where you can share your FOP story, photos and why you want to see FOP research grow.
  • Or we can provide a generic FOP community template for you.
  • You’ll set a goal and have a unique URL to send out to your friends and family.
  • You’ll get updates on who has donated to your campaign.

Invite Your Friends and Family to Our Virtual Event

We can provide you postcards or an electronic flyer to invite your friends and family to the August 25 or 26 event. Email Cathryn Roys, Community Fundraising Manager, to get your postcards and/or electronic flyer.

TAKE ACTION and kick off
the In Pursuit of a Cure Campaign.

Make a Difference

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