Join us on February 19 for the next FOP Peer Support Group meeting

The FOP Peer Support Group is the highlight of Theresa (Tisa) Caruso’s month. 

Led by counseling psychologist Dr. Al Freedman, the group meets every month for an hour and is open to English-speaking adults with FOP. 

“Al is such a good host and engages us in conversations about how we’re doing,” says Tisa. The monthly call is a safe space to celebrate accomplishments, process grief or just share about hobbies and interests. 

In between meetings, Tisa keeps in touch with old and new friends from the support group via WhatsApp. Since her childhood FOP diagnosis 45 years ago, the community has been the key to navigating the ups and downs of a rare disease. 

“It's a priority in my life to stay connected with other FOPers and have a face-to-face connection so I don’t feel invisible,” Tisa says. “We get to live this life in community— loved and known and seen for who we are despite this disease that we have been given.” 

Whether you’re new to our community or if you’ve been involved with the IFOPA since 1999 like Tisa, you are welcome in the Peer Support Group! Join us this year for one of the upcoming meetings

• February 19, 12 pm ET
• March 25, 6 pm ET

Learn more about the group, and register for the February meeting here. 

We hope this group offers you the same encouragement and connection it’s brought to Tisa and countless other individuals with FOP! 

The IFOPA also offers support groups that meet on Zoom for caregivers and bereaved families and friends. You can learn more and register at ifopa.org/calendar_of_events