This is not an IFOPA-sponsored event. Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. More information at https://globalgenes.org/event/patient-summit/.
Global Genes RARE Patient Advocacy Summit
September 28, 2021 at 6pm - September 29, 2021 Eastern Time (US & Canada)