| Eastern Standard Time (EST) |
Greenwich Mean Time (GMT) |
Friday, November 20 |
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| 9:00 to 10:00 am EST | 14:00 to 15:00 GMT | The Leaky Faucet, Fred Kaplan, MD., University of Pennsylvania | |
| 10:00 am to 11:30 am EST | 15:00 to 16:30 GMT | Common Health Questions for FOP Medical Experts Panel (US Treaters) Panelists: Drs. Mona Al Mukaddam, Ed Hsiao, Fred Kaplan and Bob Pignolo | |
| 11:30 am to 12:00 pm EST | 16:30 to 17:00 GMT | Comfort Break and Time to Connect in the Lounge | |
| 12:00 to 1:30 pm EST | 17:00 to 18:30 GMT |
FOP Clinical Trials, Part 1 Rose Marino, MD and Fei Shih, MD, PhD, Ipsen Andrew Rankin, PhD, Regeneron Pharmaceuticals, Inc Marelise Eekhoff, MD, PhD, Bernard Smilde, MSC, MD, PhD and Paul Yu MD, PhD STOPFOP |
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| 1:30 to 2:00 pm EST | 18:30 to 19:00 GMT | Comfort Break and Time to Connect in the Lounge | |
| 2:00 to 3:00 pm EST | 19:00 to 20:00 GMT |
FOP Clinical Trials, Part 2 Claudia Ordoñez, MD, Keros Therapeutics Kurt Brown, MD, Heather Jones, RN, and Paul Smith, PhD, Incyte |
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| 3:00 to 3:30 pm EST | 20:00 to 20:30 GMT | Comfort Break | |
| 3:30 to 5:00 pm EST | 20:30 to 22:00 GMT |
Small Group Discussions These sessions are CLOSED TO BIOTECH, PHARMA and OTHER CORPORATE ENTITIES. Spanish Speaking Attendees **The following sessions are intended for English speaking participants |
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| 5:00 to 7:00 pm EST | 22:00 to 24:00 GMT | Exhibit Hall Open and Time to Connect in the Lounge | |
| 7 pm EST | 24:00 GMT |
Bingo |
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Saturday, November 21 |
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| 4 to 5:30 am EST | 9:00 to 10:30 GMT |
Small Group Discussions for International Participants based on Country These sessions are CLOSED TO BIOTECH, PHARMA and OTHER CORPORATE ENTITIES. English speaking attendees (Family and Support Network) English speaking attendees (Individuals with FOP) |
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| 6 to 8 am EST | 11:00 to 13:00 GMT | Exhibit Hall and Time to Connect in the Lounge and Small Group Discussion for Italian Speaking Attendees | |
| 8 to 9:30 am EST | 13:00 to 14:30 GMT |
Common Health Questions for FOP Medical Experts Panel (International Treaters) Panelists: Drs. Genevieve Baujat, Patricia Delai, Richard Keen and Christian Scott |
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| 9:30 to 11 am EST | 14:30 to 16:00 GMT | Community Social Events | |
| Choose 1: | |||
| 11 am to 12:30 pm EST | 16:00 to 17:30 GMT |
Pain Management Panel Panelists Include: Peter Abaci, MD , Debra Kimless, MD, Karen Harrison |
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| 11 am to 12:30 pm EST | 16:00 to 17:30 GMT |
Dental Care and Anesthesia Experts Panel Panelists Include: Drs. Corrie Crowe, Clive Friedman and Zvi Grunwald |
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| 11 am to 12:00 pm EST | 16:00 to 17:00 GMT | IFOPA Research Update, Adam Sherman, International FOP Association | |
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| 12:30 to 2 pm EST | 17:30 to 19:00 GMT |
Living Well with FOP and the Ability Toolbox Program Karen Kirchhoff, MSPT, International FOP Association |
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| 12:30 to 2 pm EST | 17:30 to 19:00 GMT |
Complementary Therapies Panel Panelists Include: Michel Lemoine, MD, PhD, Veronica Winkler, CCC-SLP, Kelle Oestreich, MSHS, RRT |
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| 12:30 to 1:30 pm EST | 17:30 to 18:30 GMT | When Your Heart Hurts: Weaving the threads of loss and change into the beautiful tapestry of your life!, Sharon A. Neumann, SPMC AdvGRS | |
| 2 to 2:30 pm EST | 19:00 to 19:30 GMT | Comfort Break and Kids Contest | |
| 2:30 to 4:00 pm EST | 19:30 to 21:00 GMT |
Adaptive Tool Use and Home Adaption Problem Solving |
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| 4:00 to 6:00 pm EST | 21:00 to 23:00 GMT | Exhibit Hall Open and Time to Connect in the Lounge | |
| 7 pm EST | 23:00 GMT |
Share Your Strength Talent Show Photo Booth |
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Sunday, November 22 |
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| 8 to 10 am EST | 13:00 to 15:00 GMT | Exhibit Hall Open and Time to Connect in the Lounge | |
| 10 to 11 am EST | 15:00 to 16:00 GMT | Patient and Family Involvement in Clinical Research, Kendall Davis, MPH, PRA Health Sciences | |
| 11 to 11:45 am EST | 16:00 to 16:45 GMT | IFOPA Family Services: Connecting and Supporting Families, Hope Newport, CCLS and Karen Kirchhoff, MSPT International FOP Association | |
| 11:45 am to 12:15 pm EST | 16:45 to 17:15 GMT | Comfort Break and Kids Contest | |
| 12:15 to 1 pm EST | 17:15 to 18:00 GMT | Participating in the FOP Registry, Sammi Kile, International FOP Association | |
| 1 to 1:45 pm EST | 18:00 to 18:45 GMT |
Friendraising and Fundraising to Help #cureFOP, Cathryn Roys, International FOP Association
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