Empowering the Caregiver

Being an empowered caregiver creates a supportive space for the person providing care and the individual with FOP. This discussion highlights how fellow community members have partnered with their loved ones to lead by example and create a family philosophy that encourages a realistic approach to facing challenges and overcoming them as a family. Panelists include Barb Rossano (mother of adult community member Laura Rossano), David Robins (father of youth community member Lexi Robins) and Nancy Eichner (spouse of adult community member Steve Eichner.)

This discussion will include the following topics:

  • Working together with your loved one with FOP
  • Setting realistic goals and expectations for your family to navigate FOP challenges
  • Partnering with other members of your family/support system

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