Article on Caregiver Support in Fibrodysplasia Ossificans Progressiva Published

Thanks to the FOP community members who are taking part in the FOP Registry, another publication on FOP has been released. In July, The Journal of Rare Diseases Research & Treatment released Caregiver Support in Fibrodysplasia Ossificans Progressiva.

The findings on the need for caregiver support in the FOP community highlight the urgent need for transformative treatments that will preserve the independence of individuals with FOP.

Read Caregiver Support in FOP

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