24 Hours of Rare

February 28, 2021 at 7:00am - March 05, 2021 Eastern Time (US & Canada)

24 Hours of Rare is the only virtual event that celebrates the global rare disease community with content programmed by the rare disease community. 

On February 28, 24 Hours of Rare will highlight the best of the global rare disease community, straight-up at noon, time zone by time zone. Don't miss the amazing work being done by rare advocates, patients, medical professionals, and researchers around the world as we celebrate the global rare disease community, live from time zones around the world. 

Come back on March 1 for a five-day series of panels, breakouts, workshops and networking sessions focused on the topics and issues impacting the global rare disease community.

Schedule for week of March 1 

  • March 1 - Patients
  • March 2 - Caregivers and loved ones
  • March 3 - Medical administrators, professionals, researchers and students
  • March 4 - Medical foundations, nonprofits, advocates and NGO's
  • March 5 - Tech and Industry 

More information and registration

Make a Difference

Donate Connect Fundraise
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter