Join us Tuesday, September 16 for Day of Giving
The 2025 In Pursuit of a Cure campaign is underway — and this year marks a truly special milestone: 35 years since the first-ever fundraiser for FOP research, hosted by the family of Jud Bogard. Since 1990, families like the Bogards have helped raise millions for research — fueling major breakthroughs, including the first approved treatment for FOP.
Now, we look ahead. This year’s campaign is both a celebration of all we’ve accomplished and a call to action to keep pushing forward. New research is urgently needed to develop additional treatments and keep working toward a cure.
Our goal: Raise $500,000 for research and drug development.
100% of donations will go directly to these efforts.
How can you participate?
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Donate today to support crucial FOP research.
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Start your own fundraiser and rally your community to be part of the progress.
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Get inspired by the community-created In Pursuit of a Cure playlist (and send us your additions!)
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Post on social media (from research milestones to FOP family stories, there are many ways to share how important #cureFOP is to you)
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And mark your calendar for Day of Giving on September 16 — with special conversations and stories from FOP community members you won’t want to miss.
Together, we can fuel the next breakthrough.
