The FOP Family Gathering provides opportunities to meet others in the community and to have your questions answered by leading experts in the field.
Held every other year, this special event brings together families from across the U.S. to connect, learn, and grow—while making lasting memories.
The whole family is invited, and onsite childcare and kids’ activities will be provided.
Registration is currently open! Register by July 31 to receive a complimentary welcome goodie bag in your hotel room upon arrival.
To register and learn more, click here.
This year’s agenda includes:
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Sessions on symptom management, adaptive tools, and health insurance advocacy
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Practical tools to advocate for yourself and manage your health
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Interactive workshops, small group discussions, and activities for all ages
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Plenty of time to relax and enjoy being with people who “get it”
Hear from 2024 Family Gathering attendees.
Note: After 2025, Family Gathering will move to an every-other-year event.
For Healthcare Professionals
Join us in person at the 2025 FOP Family Gathering to observe real-time consultations between members of the International Clinical Council on FOP and families—an invaluable opportunity to deepen your understanding of FOP from both clinical and lived experience perspectives.
Reduced registration rates are available for HCPs and include meals throughout the weekend. Early registration by July 31 is appreciated.
Get more information and register here.
Can’t attend in person?
We’ll also be offering a livestream of the general sessions on November 14–15 from approximately 10 AM to 1 PM ET. Fill out the interest form to receive the viewing link when it’s available.
