Join Us for 2022 Global FOP Awareness Day!


This year marks the 16th anniversary of the discovery of the FOP gene. That means 16 years of hope, progress and determination to find a cure. We think that’s worth celebrating, and we hope you’ll join us!

FOP Awareness Day falls on April 23, but just like in the past, we’ll be recognizing it all month long—starting today! We are so excited to have 15 organizations representing 19 countries participating in this global event.

Check out some of the ways you can get involved right now:

We can’t wait to see what this month holds for our FOP community. Visit the special FOP Awareness Day page on our website for all the details and to share it with others to help spread the word. Starting today, join us to Hope. Believe. Wish. for a future without FOP.

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