People with FOP often share that they feel alone in their journey navigating life with FOP. The difficulty in explaining the specifics of a rare disease to others can make it difficult to create an engaged support network.
In this IFOPA Advocacy Series resource webinar, explore the effects of being alone in your advocacy journey and the importance of having a support system in this one-hour seminar. Learn practical tips from Licensed Therapist Jaymi Dormaier to strengthen current relationships and make new connections in the community, school setting, and with multi-disciplinary members of your health care team.
Professional translation available based on participant interest so register early.
AI (artificial intelligence) translation available. Click the registration link for a full list.
