Sunday, March 23 at 1 pm ET / 17:00 GMT / 18:00 CET

We recognize that safety is a top priority for those living with FOP and their families. It's also a topic that impacts almost every aspect of our lives. That's one of the reasons we're offering a variety of resources this year, all focusing on Safety and FOP.

We're kicking off this series with our Advocacy Series Community Panel. Who knows FOP safety better than those navigating it every day?

We look forward to hearing from Paulina Gutierrez (California), Emma Albee (Maine) and Amie Darnell Specht (North Carolina) about their experiences navigating safety and a variety of topics including mobility devices, caregivers, and emergency preparedness.

AI translation will be available in 60+ languages. See a complete list of available languages.

Register today.