The International FOP Association (IFOPA) maintains a FOP Biobank on behalf of the FOP research community. Donated samples from people with FOP, and from control donors, are stored in the Biobank at Vanderbilt University Medical Center for redistribution and use by academic and industry researchers. It is the IFOPA’s goal to place these samples into the labs of qualified researchers who will further our knowledge about FOP and accelerate the development of new treatments. Learn more and request samples.
FOP Mouse Model
Thanks to generous sponsorship from La Jolla Pharmaceutical Company, the IFOPA now owns a conditional ALK2R206H FOP mouse model that can be distributed to academic and corporate labs for unrestricted research use. The new mouse design was created in collaboration with Drs. Dan Perrien (Vanderbilt University), Aris Economides (Regeneron), Yuji Mishina (University of Michigan), Maurizio Pacifici (Children's Hospital of Philadelphia) and Eileen Shore (University of Pennsylvania). The mice are housed at Vanderbilt University Medical Center, by Dr. Dan Perrien, on behalf of the IFOPA. Learn more and request mice.
The FOP Registry is a global, voluntary database that will collect and report demographics, disease and quality-of-life information directly from individuals with FOP twice a year via a secure, web-based tool. Learn more here.