The IFOPA's Peer Support Group for English-speaking adults with FOP is an opportunity for community members to meet monthly for a 90-minute session moderated by counseling psychologist Dr. Al Freedman, dad of a son who lived for 26 years with another rare disease.
Now in its second year, the group provides opportunities for connection between community members by creating a safe space for socializing and sharing challenges related to life with FOP. The group moderator, Dr. Freedman, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.
This group is open to any adult with FOP (18+) no matter where you live. However, due to the conversational nature of the meeting, participants must be able to speak and understand English. The group meets monthly from Noon to 1:30 pm EDT / 18:00 to 19:30 CEST.