Patient Perspectives on Clinical Trial Participation Webinar

September 13, 2023 at 6:00pm - 9pm Eastern Time (US & Canada)

Will you come?

In this webinar, you'll get an overview of the active phase 2 and 3 clinical trials for FOP. You'll also hear what has motivated other people with FOP to get involved in trials and their advice for those considering enrolling.

Please note: Panelists will NOT disclose which trial they are participating in or discuss their side effects or experiences related to the placebo or drug.


- Isabella Alfieri, Italy
- Julie Christensen, Denmark
- AJ & Kristi Gonzales, United States
- Paulina Gutierrez, United States (formerly from Mexico)
- Suzanne Hollywood United States
- Manuel Robert, Argentina

- Michelle Davis, Executive Director, IFOPA
- Hope Newport, Family Services Manager, IFOPA

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