The Rare Sibling Experience

March 25, 2021 at 2:00pm - 4pm Eastern Time (US & Canada)

This is not an IFOPA-sponsored event.

Looking for support on how to guide and nurture the siblings of your child with Fibrodysplasia Ossificans Progresiva as they navigate the challenges of family dynamics shifted by the impact of a rare disease diagnosis? NORD is hosting a webinar on March 25, 2021 at 2:00 PM EDT where child life specialist, Kate McGowen, and psychologist, Dr. David Rintell will share commonly observed barriers and best practices for fostering healthy sibling relationships. Register today at

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