Find Us On:
Facebook
Twitter
Instagram
YouTube
LinkedIn
Wikipedia
Emergency medical treatment information
Find an FOP Organization Near You
Donate
Connect
SEARCH
WHAT IS FOP?
WHAT IS FOP?
FOP Symptoms
FOP Skeleton
Misdiagnosis
History of FOP
FOP FAQ
Glossary
|
PATIENTS & FAMILIES
PATIENTS & FAMILIES
Meet Other Patients
Patient Directory and Registry
Managing Your Healthcare
Connecting with the FOP Community
Resources for Support
Ability Toolbox Program
Resilient Living Program
The Harold and Elaine Kaplan Quality of L.I.F.E. Award
In Remembrance
|
RESEARCH & CARE
RESEARCH & CARE
For Physicians
For Researchers
For Patients
|
GET INVOLVED
GET INVOLVED
Donate to the IFOPA
Planned Giving
Fundraise
Volunteer
Raise Awareness
|
NEWS & EVENTS
NEWS & EVENTS
IFOPA News
FOP News
Calendar of Events
IFOPA Podcast Series
FOP Family Gatherings
In Pursuit of a Cure
Rare Disease Day
FOP Awareness Day
FOP Connection eNewsletter
Media Center
|
ABOUT IFOPA
ABOUT IFOPA
Our Mission
Programs & Services
Leadership
History of IFOPA
Jeannie Peeper Awards
International Presidents' Council
Financials
Committees
Contact Us
Home
/
Buckets
/
Just Diagnosed
Just Diagnosed
/living_with_fop
Do you like this page?
Tweet
Learn More
Is it FOP?
Just Diagnosed
Registry
Make a Difference
Donate
Connect
Fundraise
Already a Member?
Sign In
Sign Up for FOP Connection, Our Monthly eNewsletter
Optional email code
Or sign in with
Facebook
or
Twitter