We’re excited to end 2024 by gathering as an international community during three diverse community events held next month! We hope you’ll join one or more of these Zoom meetings to experience the connection, growth, and learning that have been at the core of the Virtual Family Gatherings we’ve hosted over the past three years.
- Thursday, December 5 at 12 pm ET/18:00 CET: Join Dr. Bob Pignolo as we listen to a recap and have an opportunity to ask questions related to his popular talk “Therapeutic Horizons for FOP: Targets, Treatments and Challenges.”
- Friday, December 6 at 12 pm ET/18:00 CET: Join Family Services Coordinator Melissa Davis as she presents various ways members of the FOP community have adapted their diet and how they prepare foods when FOP progression has impacted their jaw movement.
- Saturday, December 7 at 12 pm ET/18:00 CET: Join Family Services Manager Hope Newport in an interactive workshop as we break out into small groups to practice creating and sharing a story to use with others when advocating for support in a variety of settings.
These events will all be hosted on Zoom video conferencing allowing attendees to see and hear from one another. Each one-hour session will have a presentation-style portion where the host will share educational content. This will be followed by a structured time for participants to share their experiences, thoughts and questions with the group.
Sign up for one or more of the sessions here
*Artificial intelligence translation will be available in all sessions in the following languages: Afrikaans, Albanian, Arabic, Armenian, Bengali, Bulgarian, Cantonese, Catalan, Chinese (Simplified), Chinese (Traditional), Croatian, Czech, Danish, Dutch, Estonian, Finnish, French, Georgian, German, Greek, Gujarati, Hebrew, Hindi, Hungarian, Icelandic, Indonesian (Bahasa), Irish, Italian, Japanese, Korean, Latvian, Lithuanian, Malay, Maltese, Norwegian, Persian, Polish, Portuguese, Punjabi, Romanian, Russian, Serbian, Slovak, Slovenian, Spanish, Swahili, Swedish, Tagalog, Tamil, Thai, Turkish, Ukrainian, Urdu, Vietnamese, Welsh