Bunion-like toes present at birth and tumor-like swellings in a young child are diagnostic signs of fibrodysplasia ossificans progressiva (FOP), a disease with recent advances made in therapy. Upon completion of the course, learners should be able to associate great toe deformities with FOP and avoid misdiagnosing FOP as soft tissue sarcoma. Biopsy for “tumor” should be avoided in FOP. This activity is designed to meet the educational needs of healthcare providers in pediatrics, primary care, oncology, surgery, radiology, acute care, emergency medicine, rheumatology, and infectious disease and is jointly provided by P2P Syncro, International Fibrodysplasia Ossificans Progressiva Association (IFOPA), and Partners for Advancing Clinical Education. CME credit provided until 9/10/25. 

MedLive's Obtaining Support and Ongoing Care for Children and Adults with Fibrodysplasia Ossificans Progressiva (FOP) is a 7-part series on FOP where you’ll hear from specialists in FOP clinical care, social workers, people with FOP, caregivers, and advocates. Each program explores different aspects of FOP care, methods to avoid unnecessary trauma, and strategies for partnering with your multidisciplinary care team. This activity is supported by an independent medical education grant from Regeneron Pharmaceuticals, Inc.

In order to educate clinicians on the pathophysiology and full spectrum of clinical manifestations of FOP, PeerView, the American Society for Bone and Mineral Research (ASBMR), the International FOP Association (IFOPA), and PeerView's FOP Scientific and Patient Voice Consortium have prepared this FOP Education Collection comprising four unique micro-learning modules, video diaries, and a 3D animation. Participation in this activity will help familiarize learners with up-to-date clinical science and best practices for identifying FOP. By completing these educational activities, learners will be better able to recognize and understand FOP and its manifestations and avoid iatrogenic harm caused by diagnostic errors. This activity is supported by an educational grant from Regeneron Pharmaceuticals Inc. 

For patients with fibrodysplasia ossificans progressiva (FOP), prompt diagnosis and effective management are crucial to preventing disease exacerbation and improving quality of life. In this convenient three-part micro-learning video library, expert faculty will review the pathophysiology of FOP, latest diagnostic strategies, clinical evidence related to emerging therapeutics that are poised to revolutionize the FOP treatment paradigm, and strategies for personalized, patient-centered FOP care. This activity is supported by an educational grant from Ipsen Biopharmaceuticals, Inc.

This series uses Zoom video conferencing, and takes place on the first Thursday of every month at 3pm EST. In each monthly session, faculty members or guest speakers will present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to rare bone diseases at each session. In support of improving patient care, this activity has been planned and implemented by the Osteogenesis Imperfecta Foundation and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. You can view past sessions on Youtube including an Introduction to FOP, FOP and Anesthesia, Dental Issues in FOP, and Navigating the Challenges of Managing Heterotopic Ossification

Springer Healthcare IME has developed an educational series with videos, publications, diagnosis and care tools, and a webinar that features an FOP family. This educational series is supported by an educational grant from Ipsen Biopharmaceuticals, Inc. 

The FOP Treatment Guidelines, authored by the International Clinical Council on FOP, contain detailed medical information and guidelines on the symptomatic management of FOP. In order to continually provide updated guidelines with rapid access to physicians treating FOP patients worldwide, multiple simultaneous translations are not presently feasible. To ensure the widest distribution, guidelines are written in English and are accessible to physicians worldwide.

The International Clinical Council on FOP (ICC) is an autonomous and independent group of internationally recognized physicians who are clinical experts in FOP. The ICC shares best practices for clinical care and and is available for consultation.

We emphasize that this report reflects the authors' experience and opinions on the various classes of symptom-modifying medications and is meant only as a guide to this controversial area of therapeutics. Although there are common physical features shared by every person who has FOP, differences among individuals may alter the potential benefits or risks of any medication or class of medications discussed here. The decision to use or withhold a particular medication must ultimately rest with an individual patient and his or her physician. Access a complete list FOP Treatment Guidelines authors and consultants. You can access more information on the International Clinical Council on FOP at iccfop.org. Download The Medical Management of Fibrodysplasia Ossificans Progressiva: Current Treatment Considerations