Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.

Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.

Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.

Learn More and Register Here

Due to the conversational nature of this meeting, participants must be able to speak and understand English.