Hobbies and Recreation play an important part in everyday life. They provide opportunities for connection, community, purpose, self-expression, and fun. While FOP can create challenges related to safety, mobility, and accessibility, individuals living with FOP continue to find meaningful ways to participate in activities they enjoy.
Podcast
In this episode of the Advocacy Series podcast, IFOPA Family and Provider Support Coordinator Melissa Davis sits down with FOP community member Daniel Licht and his personal trainer, Joel Beasley. Together, they discuss the impact of exercise and regular gym attendance on Daniel’s life with FOP, and explore what recreation and staying active mean to him.
Joel Beasley is a strength and performance expert with over 10 years of experience in the fitness industry. The owner of Life Athletics in Orange, CA, Joel, is an NASM-certified Personal Trainer and a specialist in both Corrective Exercise and Performance Enhancement. He specializes in bridging the gap between rehabilitation and peak performance, ensuring his clients move efficiently and effectively in every stage of life.
Daniel Licht has lived with FOP since being diagnosed at age three. After a life defined by extreme physical caution, which included minimal formal exercise and a decade of occupational and physical therapy, he has spent the last decade undergoing a personal transformation. Guided by his personal trainer, he has gained a new lease on life, evolving from a world of restriction to one of newfound empowerment and resilience.
Please note that this podcast is intended as an example of hobbies and recreation. It is not medical advice and is not intended to be used as a resource for developing an exercise regimen. We hope to showcase Daniel’s personal decision to explore his physical fitness with the support of a trained professional and hope you will be inspired by his story of finding joy, strength, and community in his chosen hobby. This information is provided for informational purposes only and does not constitute providing medical advice, training, or professional services. The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. Always seek the advice of your doctor or other qualified healthcare provider regarding your medical condition.
Blog Post
For many of our FOP families, youth sports and activities can feel particularly overwhelming. Questions about safety, inclusion, physical limitations, and social opportunities often require careful consideration. In this blog post, we connect with FOP community members who share their first-hand knowledge around finding the right fit, navigating mobility challenges and accessibility issues, how to advocate and educate about FOP, and share what participating in hobbies and recreational activities means for their children and their families. With thoughtful planning, communication, and adaptations when needed, many children and young adults with FOP can pursue the hobbies and recreation that bring them joy.
Professional Conversation
Our June 16 webinar at 12:00 EDT / 18:00 CEST will explore adaptive gaming and include community members sharing their experiences with video games and computer games. You’ll hear from Drew Redepenning from Gaming Readapted, and FOP community members Justin Henke and Joe Suchanek as they discuss the role video and computer games play in their lives. They’ll also share tips on adaptive gaming strategies and equipment. Learn more and register here.
Adult Community Panel
In this July 22 Advocacy Series community panel at 12:00 EDT / 18:00 CEST, , you'll hear from FOP community members Brian Harwell (Ohio, USA), Erin Danzer (California, USA), Danie Coyne (Colorado, USA), Alice Flournoy (Georgia, USA), and Jack Fegan (Australia). They will share the hobbies and activities they enjoy most, and how these passions have helped them build rich, well-rounded lives while living with FOP. Click here to register!
Resource Webinar
Join Dr. Sumira Riaz, Founder and Health Psychologist at Unboxed Psychology, for an engaging session on cultivating purpose and passion through hobbies and recreational activities while living with FOP. The Sunday, July 26 webinar at 2 pm EDT / 20:00 CEST explores our fundamental need for social connection and how meaningful activities can foster fulfillment and a sense of belonging. We’ll also examine how procrastination can hold us back from trying new hobbies, along with practical strategies to overcome these barriers. Participants will gain insight into how engaging in enjoyable activities can enhance overall quality of life, not only for the individual, but within their broader support system and community. The session will conclude with actionable ideas and next steps to help you apply what you’ve learned and begin (or re-ignite) your journey toward more purposeful, passion-filled living. Register today!
