In our February episode of the IFOPA podcast series, IFOPA Family Services Manager Hope Newport interviews Shannon von Felden, EveryLife Foundation and Katie Burns, SmithSolve to discuss why it's important to share your rare disease experience, strategies and proactive steps you can take to prepare your story and opportunities to practice and share your story through Fast Forward for RARE and Rare Across America.
FOP community members residing in the United States can participate in the following programs:
FOP community members residing in the United States can participate in the following programs:
- Learn more about the Fast Forward for Rare Program.
- Sign up to participate in Rare Across America programming from February 22 to March 5, 2021.
