Whether you're a parent or a spouse/partner, caring for a loved one with FOP is a unique experience that many people can’t relate to. You deserve a community that understands your life and encourages you through the highs and lows. In our new monthly FOP Caregiver Peer Support Group, connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.
This group is open to any parent or spouse/partner of an individual living adult with FOP (18+) no matter where you live. However, due to the conversational nature of the meeting, participants must be able to speak and understand English.
Each session is moderated by counseling psychologist Dr. Al Freedman, dad of a son who lived for 26 years with another rare disease. Al, who has been working with the FOP community since 2022, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.
