Dr. Al Freedman, a counseling psychologist who is leading the IFOPA's Peer Support Group for adults with FOP and who lost a child to SMA, a rare disease, will be joining the Bereaved Families Virtual Meeting.

These meetings are an opportunity for those who have lost a friend or loved one to FOP to come together virtually to support each other.

Register and submit any questions you have in advance by emailing [email protected].