Patient registries play a prominent role in helping researchers learn more about rare diseases and also empowering rare disease communities to directly contribute to research. The IFOPA was pleased to showcase our FOP Registry – along with important emerging data – in a poster authored by Research Director Adam Sherman at the 2020 American Society of Bone & Mineral Research Annual Meeting.
As always, we are so appreciative of the FOP Community for contributing to this important study through your enrollment and ongoing participation in the FOP Registry.
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