Poster from the FOP Registry Authored and Presented by the IFOPA at the 2020 ASBMR Annual Meeting

Patient registries play a prominent role in helping researchers learn more about rare diseases and also empowering rare disease communities to directly contribute to research. The IFOPA was pleased to showcase our FOP Registry – along with important emerging data – in a poster authored by Research Director Adam Sherman at the 2020 American Society of Bone & Mineral Research Annual Meeting. 

As always, we are so appreciative of the FOP Community for contributing to this important study through your enrollment and ongoing participation in the FOP Registry.

Check out the poster "The Diagnostic Journey in Fibrodysplasia Ossificans Progressiva: Insights from the FOP Registry"

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