2018 FOP Family Gathering Preliminary Itinerary


November 16-18, 2018 • Four Seasons Hotel • Baltimore, Maryland


Friday, November 16

8 am to 5:30 pm   Arrivals and Registration
8 am to 5 pm   FOP Clinics, Meet and Greet and Community Activities
5:45 to 6:15 pm   Group Photo
6 to 9:30 pm   Welcome Dinner and Time to Connect

Saturday, November 17

7:30 to 8:45 am   Breakfast and Time to Connect
9 to 9:15 am   Welcome Back and Introductions
9:15 to 9:50 am   Update from Dr. Kaplan
9:50 to 11 am   Common Health Questions of FOP’ers Panel
11 to 11:20 am   Break and Time to Connect
11:20 am to 1:15 pm   Clinical Studies & Trials and You
1:15 to 2:30 pm   Lunch and Time to Connect
2:30 to 3:20 pm   Oral Health and FOP
3:20 to 4:45 pm   Living Well with FOP
4:45 to 5:20 pm   Understanding Injections & Support During Stressful Procedures
5:20 to 6:40 pm   Pain Management in FOP
6:40 to 6:45 pm   Wrap-up of Day One
7:30 to 10 pm   Dinner, Dance and Time to Connect

Sunday, November 18

7:30 to 8:45 am   Breakfast and Time to Connect
8 am to 6 pm   FOP Clinics and Community Activities
9 to 9:45 am   What You Need to Know About Surgery and Anesthesia
9:45 to 10:20 am   The IFOPA: Supporting and Enabling the FOP Research Community
10:20 to 10:40 am      Break and Time to Connect
10:40 to 11:20 am   FOP Patient Registry
11:20 am to 12:30 pm   FOP and the Power of Resilience
12:30 to 1:35 pm   Lunch and Time to Connect
1:35 to 2:35 pm   Breakout Group 1
2:40 to 3:20 pm   Breakout Group 2
3:25 to 3:55 pm   Breakout Group 3
3:55 to 4 pm   Closing


In Remembrance - Group Meeting

Marilyn Hair is organizing a time for families who have lost someone with FOP to connect and share with one another in a private setting. For those interested in participating in this program, there is a one-day registration rate available that will include dinner on Saturday and breakfast and lunch on Sunday. 

Please send a message to [email protected] if you have any questions.

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