November 16-18, 2018 • Four Seasons Hotel • Baltimore, Maryland
Friday, November 16
8 am to 5:30 pm | Arrivals and Registration | |
8 am to 5 pm | FOP Clinics, Meet and Greet and Community Activities | |
5:45 to 6:15 pm | Group Photo | |
6 to 9:30 pm | Welcome Dinner and Time to Connect | |
Saturday, November 17
7:30 to 8:45 am | Breakfast and Time to Connect | |
9 to 9:15 am | Welcome Back and Introductions | |
9:15 to 9:50 am | Update from Dr. Kaplan | |
9:50 to 11 am | Common Health Questions of FOP’ers Panel | |
11 to 11:20 am | Break and Time to Connect | |
11:20 am to 1:15 pm | Clinical Studies & Trials and You | |
1:15 to 2:30 pm | Lunch and Time to Connect | |
2:30 to 3:20 pm | Oral Health and FOP | |
3:20 to 4:45 pm | Living Well with FOP | |
4:45 to 5:20 pm | Understanding Injections & Support During Stressful Procedures | |
5:20 to 6:40 pm | Pain Management in FOP | |
6:40 to 6:45 pm | Wrap-up of Day One | |
7:30 to 10 pm | Dinner, Dance and Time to Connect | |
Sunday, November 18
7:30 to 8:45 am | Breakfast and Time to Connect | |
8 am to 6 pm | FOP Clinics and Community Activities | |
9 to 9:45 am | What You Need to Know About Surgery and Anesthesia | |
9:45 to 10:20 am | The IFOPA: Supporting and Enabling the FOP Research Community | |
10:20 to 10:40 am | Break and Time to Connect | |
10:40 to 11:20 am | FOP Patient Registry | |
11:20 am to 12:30 pm | FOP and the Power of Resilience | |
12:30 to 1:35 pm | Lunch and Time to Connect | |
1:35 to 2:35 pm | Breakout Group 1 | |
2:40 to 3:20 pm | Breakout Group 2 | |
3:25 to 3:55 pm | Breakout Group 3 | |
3:55 to 4 pm | Closing | |
In Remembrance - Group Meeting
Marilyn Hair is organizing a time for families who have lost someone with FOP to connect and share with one another in a private setting. For those interested in participating in this program, there is a one-day registration rate available that will include dinner on Saturday and breakfast and lunch on Sunday.
Please send a message to [email protected] if you have any questions.