Join us as Dr. Sumira Riaz sheds light on the delicate balance of raising a child with a rare disease like FOP, and provides strategies to promote independence and advocacy skills.
Dr. Sumira is a registered Health Psychologist and Cognitive Behavioral Therapist with over 18 years of experience working within the UK National Health Service (NHS), charity section and healthcare agencies including Atlantis Healthcare and Hive Health and has been with OPEN Health since 2017.
Collaborative work with pharmaceutical companies has allowed Sumira the opportunity to interact with a few FOP families, and in this webinar she plans to incorporate her expertise in health psychology and child development and assessment to shed light on the delicate balance of raising a child with a rare disease and provide strategies that can be used to promote independence and advocacy skills throughout the childhood, teenage and young adult years.
This event is geared for parents of people living with FOP.
Translation is available in 18 languages.