Donate Crypto to Help Find a Cure
The International FOP Association (IFOPA) depends on the generous support of people like you to continue its mission of funding research to find a cure for FOP while supporting individuals and families through education awareness and advocacy.
Chances are you've never heard of Fibrodysplasia ossificans progressiva (FOP). FOP is one of the rarest, most disabling genetic diseases known to medicine affecting approximately 1 in every 1 million. There are no ethnic, racial or gender patterns and based on the world's current population, there should be around 7,000 living with FOP. There are currently only 900 confirmed cases worldwide.
Because FOP is so rare, misdiagnosis is very common. 52% of individuals with FOP receive an incorrect diagnosis. The journey from symptoms to a correct diagnosis takes an average of 1.5 years for those diagnosed since 2016.
Help find treatments and a cure for FOP
FOP will progress, or get worse, as a person ages. Loss of mobility and range of motion caused by the growth of FOP bone is cumulative and increases over the course of a person’s life with FOP, severely limiting their ability to perform even basic activities of daily living.
Imagine no longer being able to eat your favorite food...FOP bone growth in the muscles of the face and mouth can make a person with FOP's jaws lock making eating extremely difficult.
We've heard a lot about vaccines lately...those with FOP are advised to not receive intramuscular (IM) injections since any injury to a muscle (including an injection) can cause FOP to accelerate progression. The FOP community is eagerly waiting for a COVID-19 vaccine available in a form other than IM injections. Your gift can help bring hope to the worldwide FOP community.
Why donate cryptocurrency?
Your cryptocurrency donation can help us reach our vision of a cure for FOP, accessible worldwide
Donating cryptocurrency is a non-taxable event, meaning you do not owe capital gains tax on the appreciated amount and can deduct it on your taxes. This makes Bitcoin and other cryptocurrency donations one of the most tax efficient ways to support your favorite cause. If you want to learn more about how donating crypto can lower your taxes, check out thegivingblock.com/faq. Talk to a crypto-savvy tax professional or connect with The Giving Block to get connected with one.
We accept the following cryptocurrencies: Bitcoin (BTC), Ether (ETH), Litecoin (LTC), Bitcoin Cash (BCH), Zcash (ZEC), Gemini Dollar (GUSD), Basic Attention Token (BAT), Chainlink (LINK), 0x (ZRX), Storj (STORJ), Dai (DAI), Amp (AMP), The Graph (GRT), UMA (UMA), 1inch (1INCH)