IFOPA News

Next Drug Development Forum to Take Place This October in Italy

In collaboration toward a shared vision of safe and transformative therapies for people with FOP, FOP Italia and the IFOPA will host the third annual Drug Development Forum on October 13-14, 2017 in Alghero, Sardinia, Italy.

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Caregiver Corner

Ideas for boosting the spirits of loved ones with FOP

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The 2017 FOP Lab Tour—Part 1

FOP Research Development and Partnerships Director, Adam Sherman, shares highlights of his recent travels to labs conducting FOP research across New England.

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Share Your FOP Story

A new feature on the IFOPA website makes it easy to share your unique FOP story

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Heart and Mind

Tim and Debbie Hazlett Reflect on Their 18-Year Journey with FOP

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Team #cureFOP Ideas for Summer Fundraising

Join Team #cureFOP and turn your favorite summer activity into a fundraising opportunity for the IFOPA.

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Tips for Getting Your Wheelchair Approved

Kristi Gonzales shares good ideas for success

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New Pinterest Board: Play and Recreation

Share Your Favorite Summer Play and Recreation Products on the IFOPA’s Pinterest Page

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Enroll in the FOP Registry

It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.

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"There’s Hope Based in Momentum"

Evelyn Mann “Can do this…”

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