Living with FOP

If you or a family member has just received a diagnosis of fibrodysplasia ossificans progressiva (FOP), you will have plenty of questions. The IFOPA provides information on this site to help answer many of them.

Remember that you are not alone.

Please take some time to navigate the site to learn about FOP and to find support for the days ahead. You may need time to adjust to the new diagnosis, so go at your own pace to educate yourself about FOP.

Here are some suggested links for newly diagnosed families.

You are also welcome to contact us with any questions.

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