Patient and Family Support

The IFOPA serves as a trusted resource to people with FOP and their families by providing flexible and tailored support and connections through all stages of life with FOP.

The IFOPA also enables informed decision-making about treatments and research participation by the community of people with FOP.

The IFOPA equips FOP national organizations based outside of the United States to serve individuals with FOP and their families in their respective geographic areas. 

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