ProgramNameOpts-01.jpgYou dream of a world free of FOP. Your fundraising will help the IFOPA fund critical research and support services to help us achieve just that.

Through Team #cureFOP, raising funds and awareness for The IFOPA is fun and easy. Simply turn your existing hobbies and passions – anything from running to baking to fashion to golfing - into a fundraising opportunity. We’ll be here every step of the way to help you as you mobilize your friends, family and coworkers to bring your ideas to life.

What will you do to help fundraise for the IFOPA?

Team #cureFOP allows anyone to create a webpage for their personal fundraising campaign or event. You can share information about you, the person with FOP who inspires you to fundraise and post photos or videos. Get started today with the Team #curefop Planning Guide, visit the Team #cureFOP webpage, or contact Sara Brown, Community Fundraising Manager, at or (816) 489-2928.


Turkey Trot for FOP

This Thanksgiving season, run or walk with those you’re thankful for to help a cause you’re passionate about. When you do, you’ll raise awareness and funds to help #cureFOP.

Participation is easy:

  1. Register for a Turkey Trot in your community. Simply google "YOUR CITY + Turkey Trot" or use this search tool.

  2. Dedicate your Turkey Trot participation to FOP. To get started, click the Register button below. Each participant will receive a race kit with FOP swag, including FOP shoelaces and a race day bib. Teams are also welcome! 

  3. Make a donation to your Turkey Trot, and ask your friends and family to do the same.

  4. Earn your Turkey Trot for FOP shirt. When you raise (or donate) $150 or more by November 16, you’ll receive an official long-sleeved Turkey Trot for FOP t-shirt to wear on race day.* 

Click here to Register.

Questions? Contact Sara at

*The first 40 participants to reach the $150 fundraising goal by November 16 are guaranteed a shirt by race day. 

NEW: Host a restaurant or shopping night for FOP!

A variety of restaurants and retailers across the country host charity nights. Typically, a percentage of sales from an evening will be donated to selected charities. These are fun opportunities to get your friends and family members together for a night out to benefit FOP! Learn more and see a list of participating restaurants and retailers by clicking here.

Recent Fundraising News

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Talbots Fundraiser for IFOPA

Team Addgene Runs Superhero 5K

Lincoln's Legacy Run

Physical Freedom Festival

Letter Writing Campaign in Honor of Natalie 


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