Calendar

  • Samson Strong 5K

    Saturday, April 29, 2017 at 10:00 AM
    Tennessee River Park in Chattanooga, TN

    Help fund a cure for Samson Hixson.

    FOP (Fibrodysplasia Ossificans Progressiva) is an extremely rare and debilitating genetic condition where rogue bone forms in muscles and other soft tissues of the body, progressively restricting movement.

    There is currently no treatment for FOP, however there is a clinical trial underway and a new trial beginning later this year.

    Please help us find a cure by participating in Samson Strong 5K!

    Participation Opportunities:

    • $25 - Ages 11+: Includes entry into the race, an event t-shirt, snacks and refreshments.
    • $15 - Ages 5-10: Includes entry into the race, snacks and refreshments. Note: If you'd like a t-shirt, please register as an adult.
    • Free - Ages 5 and Under: Includes entry into the race, snacks and refreshments. Note: If you'd like a t-shirt, please register as an adult.
    • $250 - Silver Sponsor: Includes your name or logo on the event t-shirt.
    • $500 - Gold Sponsor: Includes your name or logo on the event t-shirt and banner.

    Registration is open until April 28, 2017, however please register by April 15, 2017 to ensure you receive a t-shirt!

    Register today at https://donate.ifopa.org/samsonstrong

  • Canadian FOP Network Family Conference & Medical Clinic

    Friday, June 16, 2017 at 12:00 PM through June 18, 2017
    Canadian FOP Network Family Conference & Medical Clinic

    Save the date!

    June 16 to 18, 2017 will be the Canadian FOP Network Family Conference and Medical Clinic in London, Ontario, Canada.

    More information to come.

  • FOP e.V. Meeting in Valbert, Germany

    Friday, July 28, 2017 at 12:00 PM through July 30, 2017
    FOP e.V. Meeting in Valbert, Germany

    Save the date!

    Next FOP e.V. Meeting will be July 28 to 30, 2017 at the House Nordhelle in Valbert, Germany.

    More information to come.

  • Russia FOP Meeting

    Wednesday, August 02, 2017 at 12:00 PM through August 04, 2017
    Russia FOP Meeting

    Save the date!

    Russia FOP Meeting will be held in Moscow July 23 to 25, 2017.

    More information to come.

  • Dinner & Auction for Lincoln

    Friday, August 18, 2017 at 12:00 PM
  • III Encuentro Latinoamericano de FOP

    Monday, August 28, 2017 at 12:00 PM through August 29, 2017
    Buenos Aires, Argentina

    Save the date!

    More information to come.

  • ZipperQ6

    Saturday, October 07, 2017 at 12:00 PM
    West Bend Green in Claremore, OK

     Family-friendly event for everyone!
    • Annual BBQ Challenge and Cook Off
    • BBQ teams serving chow from 4 pm – 6pm (Get your Tasting Kits at event!)
    • Also Enjoy:
       o Free Admission
       o Live Music
       o Free Pop/Water
       o Free Kids Games
       o Snow Cone Truck

    Sponsorship and BBQ Challenge registration coming soon!

     

  • 2018 FOP Friends, UK Conference & Family Gathering

    Friday, May 18, 2018 at 12:00 PM through May 20, 2018
    2018 FOP Friends, UK Conference & Family Gathering

    Save the date!

    2018 FOP Friends, UK Conference & Family Gathering will be May 18 to 20, 2018.

    More information to come.

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