Your Personal FOP Journey—Why It’s So Important for FOP Research

In our June episode of the IFOPA Podcast Series, IFOPA Executive Director Michelle Davis chats with Sammi Kile, IFOPA's FOP Registry Project Manager. You'll learn about the FOP Registry and how FOP patients around the world are making significant contributions to FOP research through telling their FOP stories. You'll hear exciting statistics from the 2020 FOP Registry Annual Report and what's in store for the future of the Registry. The podcast also provides a great refresher on how and when to participate and get technical assistance. Finally, you'll get a reminder about the FOP Registry Rewards Program.

Learn more about the FOP Registry.

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