Did you see Whitney in Times Square?

Thank you to the Weldon family for the opportunity to spread awareness about FOP on a billboard in Times Square. The IFOPA is honored to be featured along with Bideawee, America's first no-kill animal rescue founded in 1903.

About FOP

Fibrodysplasia ossificans progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine. FOP causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. There is no cure for FOP. Learn more about FOP and its symptoms.

About the IFOPA

The IFOPA exists to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. Learn more about the IFOPA's impact

The Quest for Treatments and a Cure

Since the identification of the gene responsible for FOP in 2006, many research centers and pharmaceutical companies around the world have developed not only an interest in FOP, but research programs to better understand and develop treatments for this debilitating disease. Like all of us, their ultimate goal is the development of treatments and, one day, a cure for FOP.

Every Gift Makes an Impact

Your gift to the IFOPA funds critical research and provides education and support for patients and families dealing with this life-changing, debilitating disease.




A special thank you to @hildieplumpepper for providing this unique illustration of Whitney.

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter