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Pages tagged "IFOPA"
FOP Fun Day in the Pacific Northwest
Posted on
IFOPA News
by
Merritt Neil
· August 28, 2019 10:50 AM
Raising awareness and fundraising to help #cureFOP in Gig Harbor, Washington
Read more
ACT for FOP Grant Program Now in its 5th Year
Posted on
IFOPA News
by
Merritt Neil
· July 23, 2019 2:24 PM
Advance Research - Help Fund ACT for FOP Grants
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FDA Listening Session on FOP
Posted on
IFOPA News
by
Merritt Neil
· July 23, 2019 2:24 PM
Read the FDA Report
Read more
Natural History Study Data Shared With The FOP Registry
Posted on
IFOPA News
by
Merritt Neil
· July 23, 2019 2:23 PM
Data sharing benefits the FOP community
Read more
Million Dollar Bike Ride Fundraising Totals Are In
Posted on
IFOPA News
by
Merritt Neil
· July 23, 2019 2:23 PM
Team#cureFOP raises over $79,000 for New FOP Research Grants in the 2019 Million Dollar Bike Ride
Read more
New This Year at the 2019 FOP Family Gathering
Posted on
IFOPA News
by
Merritt Neil
· June 26, 2019 4:24 PM
Here's a sneak peak at what's new at the 2019 Family Gathering!
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Interested in Participating in an FOP Research Study?
Posted on
FOP News
by
Merritt Neil
· May 31, 2019 4:58 PM
Blueprint Medicines conducting a one-time research study and looking for volunteers
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A message from the ICC on FOPCon
Posted on
FOP News
by
Merritt Neil
· May 24, 2019 10:43 AM
Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)
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New Friends of the IFOPA Busy Spreading FOP Awareness
Posted on
IFOPA News
by
Merritt Neil
· April 02, 2019 10:31 AM
"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."
Read more
FOP Mouse Model Now Available to Researchers
Posted on
IFOPA News
by
Merritt Neil
· March 20, 2019 2:09 PM
The
IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.
Read more
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