Advice and Ideas from FOP’ers in the Work World
Career Talk is your place to learn how others living with FOP have navigated their career path, what led them to their current profession, the obstacles they have faced, adaptations they've found helpful and more.
Do you have career advice to share? You can participate by filling out a simple profile page and answering a few questions. You’ll be asked to include your basic contact information so that other FOP’ers can get in touch with their questions and keep the conversation going.
If you have ideas for additional ways to share your experiences, network virtually, or if you have topics you'd like to suggest for future career-focused articles, please email us at firstname.lastname@example.org.
International FOP Awareness Day is Monday, April 23, 2018. Generous friends of the IFOPA have agreed to help us raise $60,000 throughout the month of April in honor of FOP Awareness. They will match every dollar we receive—up to $30,000! But we must raise $30,000 to be eligible for the match.Read more
We are excited to announce that the 2018 FOP Family Gathering will be held Nov. 16-18 in Baltimore, Maryland. This is the first time an FOP meeting for families has been held in the Northeast since the year 2000. We hope you will join us.Read more
ABLE accounts are tax-advantaged savings accounts that have the potential to significantly increase the independence and quality of life of individuals with disabilities without jeopardizing benefits such as Medicaid and Supplemental Security Income (SSI).Read more
After many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinars on each of these trials (please register for each separately).Read more