Physical Freedom Festival Raises Money for IFOPA
Thank you to the Pullano family for hosting an incredibly successful Physical Freedom Festival in Middletown, CT
Read moreIFOPA Leadership Develops Guidelines for Engaging Pharmaceutical Companies
New document is intended to define a preferred partnership approach and ensure IFOPA’s independence as a patient organization
Read moreYahtzee is a Good Friend
Miriam Rocke’s service dog fills several roles in her life
“He’s almost 7, but he still acts like a puppy,” says Miriam Rocke. “He does that ‘I have something in my mouth’ walk when he wants to show off.”
Read moreLetter Writing Campaign in honor of Natalie
Effective grassroots fundraising
Read moreCelebrating One Year of Making a Difference
The FOP Registry is celebrating one year of making a difference today!
Read moreIFOPA's Support of Clinical Trials
A Message about the IFOPA's Support for Clinical Trials
Read moreAn Update on FOP Drug Development: News from the FOP Italia Annual Meeting
Summary from the IFOPA Research Committee
The FOP research landscape is evolving at a rapid pace in many wonderful ways. Global efforts to develop therapies for FOP are stronger than ever among academic and biopharmaceutical teams. The IFOPA works continuously to monitor and support these efforts, serve as an advocate for the FOP community, and inform you of progress whenever possible.
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