Exciting Changes for 2017
Growing our ability to deliver on the IFOPA's mission
Read moreThree new Clementia sites now open for Part B of the Phase 2 Open-label Extension Trial
Approval of 3 New Sites!
The participation of individuals living with FOP in clinical studies and trials is key to FOP drug development efforts.
Read moreFirst Ever Regional Gathering Draws FOP Community to St. Louis
The weekend of November 4, 2016, found members of the FOP community gathered in St. Louis, Missouri
Read more2016 Competitive Research Grant Program Winners Announced
The IFOPA is pleased to announce the three recipients of nearly $108,000 in research grants through its Competitive Research Grants (CRG) Program
Read moreRemember the IFOPA During the Holidays
This holiday season, it’s easier than ever to give back
Read moreIFOPA Hosts Drug Development Forum
The IFOPA hosted the second Drug Development Forum Oct. 24 to 25 in Boston, Massachusetts
Read moreTalbots Fundraiser for FOP
Talbots patrons got a jump start on their holiday shopping – all to benefit The IFOPA!
Read moreTeam Addgene Runs Superhero 5K
Thank you to team Addgene who ran the Superhero 5K in Cambridge, Massachusetts in honor of AJ!
Read moreRegistry Will Soon Be Translated into Six Languages
Meeting the needs of the global FOP community
Read moreJoin the IFOPA and Clementia for an Important Webinar
Phase 2 Trial Webinar
We hope you’ll join us Wednesday, Nov. 30, 2016, 11 am to noon Eastern Time, for an important webinar presented by Clementia on the top-line results from the phase 2 trial of palovarotene for treatment of patients with fibrodysplasia ossificans progressiva.
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